Education

Leadership

CHAIR
Paz Fernández-Ortega, RN, MSc, PhD
Spain

VICE-CHAIR
Manon Lemonde, PhD, RN
Canada

VICE-CHAIR
Judy Phillips, DNP, FNP-BC, AOCN
USA

Education Subgroup: Digital Health

Leadership: Co-Chair: Penelope Schofield, PhD - Australia, Co-Chair: Ysabella Van Sebille, PhD, MD - Australia

>> How to Join

To join a Study Group, login to your account, and click the Manage My Account/Profile. Scroll down to your profile data and select "Edit". Then select the study group as one of your three Study Group selections. Click SAVE.

To join a Subgroup, you must be a member of the parent Study Group. Login to your account, and click Manage My Account/Profile. Scroll down to your profile data and select "Edit". Then select the subgroup. Click SAVE.
Subgroups do not count toward your three Study Group selections.

>> More information or to contact Study Group/Subgroup leadership

To contact a Study Group or Subgroup Leader, search for their name in the member directory.
For more information or questions, contact the MASCC office at [email protected].

Mission and Goals

The goal of the Patient Education Study Group is to ensure that patient education is an integral part of all aspects of supportive cancer care. A needs assessment survey of MASCC members has provided useful information for future planning.

Recent Study Group activities include the development and pilot of a patient guide containing questions that patients might want to ask about their disease and treatment. The Study Group is also collaborating with the Mucositis Study Group to develop a patient education brochure and test its effectiveness in several languages and cultural settings. The Study Group has discussed the need to evaluate the readability of existing patient education materials and how best to respond to members who have indicated a lack of patient education materials in their own countries and languages.

Guidelines & Assessment Tools

MASCC Antiemesis Tool© (MAT) - The MAT is available in English and five languages (French, German, Italian, Portuguese, and Spanish), obtained by the standard forward/backward translation process. This tool is for the professional to use in assessing a patients nausea and vomiting.
MASCC Oral Agent Teaching Tool© (MOATT) - The MASCC Teaching Tool for Patients Receiving Oral Agents for Cancer (MOATT) was developed by MASCC members and evaluated and revised so that it may be used worldwide. It is available in several languages that were translated using the standard forward/backward translation process. Kav S, et al (2008).
Role of the Nurse in Patient Education and Follow-Up of People Receiving Oral Chemotherapy Treatment: An International Survey. Supportive Care in Cancer 2008;16(9):1075-83. Kav S, Johnson J, Rittenberg, C, Fernandez-Ortega P, Suominen T, Olsen P, et al.
Abstracts of the 2008 International MASCC/ISOO Symposium. Supportive Care in Cancer 2008;16(6):619-756.
Development of the MASCC Teaching Tool for Patients Receiving Oral Agents for Cancer. Supportive Care in Cancer 2010;18(5):583-590. Kav S, Schulmeister L, Nirenberg A, Barber L, Johnson J, Rittenberg C.

Past Workshops

Update on Venous Thromboembolism: Approach and Challenges. MASCC/ISOO Annual Meeting, Washington, DC, 2017.
Integration of Oncology and Palliative Care: Why? What? Who? When? How? MASCC/ISOO Annual Meeting, Washington, DC, 2017.

Recent Member Publications

Recent Study Group member publications related to cancer education, literacy, and communication.

Resources

Cancersymptoms.org - An ONS website designed for patients and caregivers. Provides information on managing common symptoms associated with cancer and its treatment.

Cancer.Net — Information and resources for people living with cancer and those who care for and about them. From the American Society of Clinical Oncology with support from the Conquer Cancer Foundation.

CancerCare® — Dedicated to helping people face the many challenges of a cancer diagnosis through counseling, support groups, education, and financial assistance. CancerCare®, a cancer counseling and support organization, provides easy-to-read booklets and fact sheets on cancer-related topics (within the US and Canada). CancerCare also conducts Connect Education Workshops, in which leading experts in oncology provide up-to-date information on cancer-related topics. The workshops are recorded and available for online listening or downloading in mp3 format.